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Dec14

Pride and belonging - queer seniors and social service agencies

Wednesday, 14 December 2011 Written by // John McCullagh - Publisher Categories // Aging, Community Events, Conferences, News Categories, Events, Health, Living with HIV, John McCullagh

The experiences of queer seniors living in long-term care homes or receiving services in day care and recreational programs hasn’t always been positive. In the second of a two-part series on the needs of older LGBT people, John McCullagh reports.

 Pride and belonging - queer seniors and social service agencies

In the first of these two reports from the Senior Pride Network’s (SPN) Opening the Closet on Aging conference held in Toronto at the end of November 2011, I wrote about what aging means for a generation of queer people whose activism was central to our current rights activity and how aging complicates issues related to sex, sexuality and our abilities to live open, out lives.

To help us begin to explore solutions to these issues, the 175 delegates in attendance at the conference took part in a number of workshops on a variety of topics: how to inspire a culture of change in building safe and accessible spaces for older queer people, how to access appropriate health care, issues of loss, resilience and personal empowerment, the concerns of older LGBT newcomers and refugees, sexuality in old age, aging with HIV and practical matters such as legal and human rights and making the most of social media.

One of the workshops that I found particularly interesting focused on the experiences and lessons learned when creating older LGBT-inclusive programs and policies in senior day care and recreational programs as well as in long-term care homes.

Unfortunately, the experience of queer seniors in such places hasn’t always been positive. LGBT seniors have reported negative reactions from staff, volunteers and non-queer clients that include rejection, discrimination, open hostility, harassment, excessive curiosity, avoidance of physical contact and breach of confidentiality. This results in many queer seniors living in isolation.

All the agencies who presented at this workshop acknowledged that a large number of their future clientele were likely going to be members of the LGBT community and that this meant they had to - wanted to - increase access and equity for queer seniors.

So the question is, how to do it? The good thing is that the wheel doesn’t have to be re-invented. Many social service agencies - and not just those working with seniors - have already learned what works when providing services to members of the queer community.

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Of primary importance, we were told, is ensuring that an organization is welcoming of LGBT people, that it’s a place where they feel safe and secure. How welcoming is an agency to queer people - and not just to clients but staff and volunteers as well? Does it have images - rainbow flags, for example - and brochures that let people know that they’re welcome there?

But welcome signs, however important, are just the start. You cannot be welcoming without clear policies, procedures and programming to back it up. And that cannot be done without the involvement of members of the queer community to provide advice, support and feedback.

The workshop presenters were clear that education of management, staff and volunteers at all levels is crucial. Some may come to training with strong religious or personal values and assumptions that may make it difficult for them to fully accept queer people (including the special needs of those living with HIV) in a non-judgmental and supportive way. Experience shows, however, that most staff and volunteers in social service agencies value training that’s sensitive and respectful and that focuses on clients as people with individual needs.

Yet, at the same time, the organization must to be clear about the direction it’s going in - to be inclusive and accepting of queer people. And those who cannot accept that direction are not suitable people to work or volunteer there. But because we’re all human, undesirable or inappropriate incidents will occur so risk management procedures need to be in place to ensure that there’s a process to deal with inappropriate behaviour.

Training and good policies, however, aren’t enough. All the agencies who presented agreed that LGBT-inclusive programming was an important component in making an agency queer-friendly. Such programming could include discussion groups, outings to community events, in-house cabaret shows and, not least, the annual celebration of Pride week. By making such activities inclusive, so that those who attend don’t have to identify as queer, agencies have found that the their non-LGBT clients become more accepting of those who are. “I’m here to support my [queer] friend” was one typical comment.

Ken Miller is a resident of one of the City of Toronto’s long-term care homes, where the administration is working hard to make them LGBT-welcoming and inclusive. He moved his audience when he talked about how shocked yet pleased he was when his long-term care home organized activities in-house to coincide with Toronto’s annual Pride Week celebrations. “I came out all over again - with pride”, he said. This was a powerful statement from a man who came from a time when queer people didn’t have a voice. Miller’s experience of proudly living an openly gay life in a city-run long-term care home shows what’s possible when an agency delivers appropriate services for LGBT people in a positive and caring environment.

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The agencies who presented at this workshop had clearly made great strides in making their programs and services inclusive and welcoming of queer people. I couldn’t help noticing, however, that most of the presenters at the workshop were self-identified queer people. It does seem - and this reflects my own experience in doing this kind of work in a child welfare agency - that, while we have lots of straight allies who are open and accepting of our needs, it’s still LGBT people ourselves who need to be up front and centre in ensuring that change happens.

So where do we go from here? About 60% of the people who were registered for the conference came from agencies that work with seniors. Many were LGBT community members, many were not. As such, service providers attended workshops alongside community members and had the opportunity to share experiences and to work collaboratively on activities and projects designed to enhance services for older queer people. As this work is necessarily ongoing, the SPN is hoping to plan additional capacity building opportunities and community events to address the topics raised in this two-day conference.

I left the conference with a feeling of hope - that together we are on the road to expanding appropriate and welcoming programs and services for older lesbian, gay, bisexual, trans and queer people, both in Toronto and throughout Canada.

Editor's note: We've added a trailer for the excellent documentary Gen Silent which covers some of the issues John has addressed here.

 

Dec13

Louise Binder in the Toronto Sun: HIV treatment in Canada lacking.

Tuesday, 13 December 2011 Categories // Activism, News Categories, Women, Media, Opinion Pieces, Population Specific

PositiveLIte.Com writer and activist Louise Binder talks to reporter Kevin Connor about the state of #HIV treatment in 2011

Louise Binder, seen Nov. 28, 2011, has had HIV since 1993. (Dave Thomas/Toronto Sun)

PositiveLite.Com says: we were delighted to see our Louise Binder made the Toronto Sun December 1, 2011, World AIDS Day, albeit surrounded by ads for Pizzaville (two medium pizzas, six toppings for $18.99?  Not bad!), The Sun story story goes on to take a lightning tour of a host of HIV-related issues, which will likely never be referred to again in the pages of the Sun, at least until World AIDS Day 2012.  Still, any coverage of these issues is good and kudos to the Toronto Sun for stepping up to the plate.  Louise does a grand job of highlighting some of the  inequities in treatment access which exist in Canada right now too.

We’ve also included readers’ comments, to illustrate the public perception of HIV in 2011.  Interesting!

Here is the article: .

By Kevin Connor ,Toronto Sun  December 01, 2011

TORONTO - Louise Binder has seen a lot of change since she was diagnosed with HIV in 1993, but as World AIDS Day arrives on Thursday wonders why even in Canada people aren’t being properly treated.

“One of the major issues is we still have marginalized people who aren’t getting access to treatment. There are the haves that get treated and the have-nots — like Aboriginal people — who aren’t getting treatment and they are dying,” said Binder, who is with the Canadian Treatment Action Council.

The Canadian HIV/AIDS Legal Network says Aboriginals account for 8% of Canadians with HIV and make up 12.5% of all new infections.

One in four new HIV infections in Ontario is among marginalized women, a survey shows.

Even though there have been significant advances in HIV care, 25% of new HIV infections from 2006 to 2008 were in women, according to a health study by researchers from the Institute for Clinical Evaluative Sciences and St. Michael’s Hospital.

“The epidemic has moved to the marginalized population with people who are already at risk, the people who have to put up with what is dished out to them. Housing is also a huge problem for HIV people because you need to be housed to remain on treatment,” Binder said.

“We don’t have a cure, but treatment can change your life.”

A new study for Casey House, which cares for people with HIV/AIDS, shows that nine out of 10 Ontarians believe that society has a “moral obligation” to provide compassionate care to people living with the disease.

“The good news is that HIV/AIDS is no longer a death sentence,” says Dr. Kevin Gough, director of infectious diseases at St. Michael’s Hospital, who co-authored the report.

“Today, if people have access to treatment, HIV/AIDS can be more like a chronic disease that waxes and wanes in severity throughout their lives. That’s terrific news. But we’re seeing that as people age with HIV/AIDS, their health-care needs frequently escalate and can become very disabling.”

Casey House has announced a new Day Health Program to help people age with the disease.

“The Day Health Program will be an innovative response to the expanding demand for chronic-care management in our province, which currently claims 55% of direct and indirect health-care costs in Ontario,” said Stephanie Karapita, CEO of Casey House and co-author of the report.

“Not only is this program a targeted means to address the expanding and deepening need for complex HIV/AIDS treatment in Toronto, but it’s also an effective way to reach out to marginalized populations who are not currently getting the range of health-care services that they need to stay healthy.”

Experts say that AIDS funding in Canada and internationally is nowhere near what it should be.

“At home, federal funding for HIV has been flat-lined since 2007 and it is unknown whether federal funding will be cut even further next year,” said Richard Elliott, executive director of the Canadian HIV/AIDS Legal Network. “Cuts and delays in funding would have serious implications for front-line community services that do HIV prevention and support services, and most importantly, the people who depend on those services.

“On the global front, just as we are seeing results from sustained global investments in HIV prevention and treatment, funding is stalling and governments are failing to support what is needed. In 2010, UNAIDS estimated a $10-billion shortfall for a comprehensive and effective global AIDS response.”

Binder says another concern is that legal action against people with the disease is becoming far too common.

There has been an increase in cases in which people with HIV have been charged with offences in the Criminal Code where there has been no significant risk of transmitting the disease — which simply criminalizes a person based on their HIV-positive status. “People who knowingly infect others are criminals. Most people are unlikely to transmit their disease, but the justice system in Canada is putting (HIV) people in jail at an alarming rate,” Binder said.

“HIV is easy to prevent but young people are still becoming infected. We need more public education.”

**************************************

And a selection of Sun reader’s comments  . . . 

"Non HIV people in Ontario are having as much of a hard time accessing health care with the usual problems so what's the difference for them?"

"Blame ROB FORD AND STEPEN HARPER FOR THIS"

“People who knowingly infect others are criminals. Most people are unlikely to transmit their disease, but the justice system in Canada is putting (HIV) people in jail at an alarming rate,” Binder said. AND dear Louise Binder - please prove this utterly stupid statement.  Like that our Aboriginals are the 'have nots' - certainly not ALL of them.  Their Chiefs and their families are doing quite well in their monster homes and hummers.Then she says HIV is easy to prevent but young people are still becoming infected...then they are stupid as EVERYONE knows the way to GET aids is IV drug use and being a fvck (sic) pig or both. Simple to figure out. So tell us Louise, how'd you get infected if it's so easily preventable? Information about this was WIDELY pushed in this country since the mid 80's."

"This will teach them, not to be careless in whom they have sex with".

"Sorry, but drug users who share needles, people who have unprotected sex with multiple partners I have NO sympathy for. On the other hand people who were infected by tainted blood, or by a parent during pregnancy I think should have priority in treatment as they had no choice in this matter. People who are infected and continue to have unprotected sex should be automticly (sic) charged with attempted murder and be done with it. The aboriginals have just as much chance for treatment as anybody else,,,,,just ask the elders who steal the money left right and center.How many billions of dollars are we supposed to keep giving if this disease is easily preventable.....you do everything you shouldn't be doing and contact HIV too bad, this is not like a cancer that can and does hit everybody and anybody you make your choices.".

Dec08

HIV stigma is alive and well in Hershey, Pennsylvania

Thursday, 08 December 2011 Written by // Bob Leahy - Editor Categories // Activism, Current Affairs, News Categories, Youth, Legal, Living with HIV, Population Specific , Bob Leahy

The ghost of Ryan White. When a school denies admission to a 13-year old for having HIV, how can they possibly justify it? It’s 2011, after all. This is how. (Hear what Anderson Cooper has to say too.)

HIV stigma is alive and well in Hershey, Pennsylvania

The case has received a lot of attention. It’s unbelievable.  But in case you haven’t been following, here are the facts, as per Reuters.  A private boarding school connected with the Hershey chocolate company says it was trying to protect other students when it denied admission to a Philadelphia-area teenager because he is HIV-positive.

The AIDS Law Project of Pennsylvania filed a lawsuit on behalf of the unidentified boy in U.S. District Court in Philadelphia on Wednesday, claiming the Milton Hershey School for disadvantaged students violated the Americans with Disabilities Act.

School officials acknowledged that the 13-year-old boy was denied admission because of his medical condition.

The interesting and perhaps most revolting part of the story is the how the school justifies this archaic and discriminatory behaviour  that want even appropriate twenty years ago. So, again, in case you haven’t read it, here is the press release from the school involved

Dec. 1, 2011, 5:01 p.m. EST

Statement from Milton Hershey School on Lawsuit Filed by the AIDS Law Project of PA

HERSHEY, Pa., Dec. 1, 2011 /PRNewswire via COMTEX/ -- The following statement was issued today by Connie McNamara, Vice President, Communications at Milton Hershey School:

Milton Hershey School had planned to file a request in federal court asking the court to review our decision to deny enrollment to a child who is HIV positive because of concerns for the health and safety of our current students.

bobhershey2a

We had been in discussions with the AIDS Law Project of Pennsylvania, which is representing this 13-year-old boy. Recognizing the complex legal issues, the School was preparing to ask the court to weigh in on this matter. Unfortunately, attorneys for the young man took the adversarial action of filing a lawsuit against the School.

The decision to deny enrollment was a challenging one for us to make. Like all our enrollment decisions, we need to balance our desire to serve the needs of an individual child seeking admission with our obligation to protect the health and safety of all 1,850 children already in our care.

Attorneys for this young man and his mother have suggested that this case is comparable to the Ryan White case. But this case is actually nothing like the Ryan White case. Milton Hershey School is not a day school, where students go home to their family at the end of the day. Instead, this is a unique home-like environment, a pre-K -12 residential school where children live in homes with 10-12 other students on our campus 24 hours a day, 7 days a week.

In order to protect our children in this unique environment, we cannot accommodate the needs of students with chronic communicable diseases that pose a direct threat to the health and safety of others. The reason is simple. We are serving children, and no child can be assumed to always make responsible decisions that protect the well being of others.

That is why, after careful review and analysis, we determined we could not put our children at risk.

(Contact: Connie McNamara 717-520-2212 This email address is being protected from spambots. You need JavaScript enabled to view it. )

Meanwhile the child involves is quoted as saying “I don’t feel normal anymore.”

The school is a disgrace.

Here’s what CNN's Anderson  Cooper had to say about the story.  In the video below he is talking to school spokesperson Connie McNamara, with a response from the teen involved, an interview with Ryan White’s mother and  the teen’s attorney.

 

Aug30

BLOGGING for HIVERS 101. Part One: a blogging life, plus six reasons why blogging is good for you.

Tuesday, 30 August 2011 Written by // Bob Leahy - Editor Categories // Social Media, News Categories, Contributors, Bob Leahy

Why blog? First of a two part series in which long time blogger Bob Leahy offers tips for HIVers who want to get in to the blogging game.

BLOGGING for HIVERS 101. Part One: a blogging life, plus six reasons why blogging is good for you.

You’ve kept a diary (twenty years ago). You’ve Tried Facebook. Tried twitter even, perhaps, but who can tell the story of their life in 140 characters or less?

There are dozens of reasons why it makes sense for HIVers to have a blog, and I’ll get to those in a minute. None of them applied to me in 2003 when I first started blogging. It was really by accident. I was following the exploits of a male escort who happened to use LiveJournal to record the carnal ebb and flow of his life. It was titillating, so I checked in regularly, like you do, you know. And then, for some reason – probably because it looked new and shiny back then, and I’ve always had a soft spot for new and shiny, I tried LiveJournal myself, minus the carnal exploits.

2,000 entries later and, unbelievably almost 100,000 comments received, I’ve given up on LiveJournal. It fell victim to a Russian takeover which left it seemingly perpetually broken. PositiveLite came along, and once I assumed editorial duties, all but took over my life.

My blog on LiveJournal, though, was the real thing. I wrote daily and obsessively about everything – what I did each day, sometimes what I ate, what was burning me up - plus a steady diet of obsessions like American Idol and So You Think You Can Dance. Lots of doggie news too, and thousands of photographs - at least one each day, sometimes a dozen or more. But my journal was also very much an HIV journal. I talked about my treatment, my numbers, my doctor’s visits (with photos of course) and, increasingly, the HIV work I was involved in. LiveJournal readers went with me to lots of meetings and lots of conferences. And I got lots of feedback on that too – neg people telling me how much more they knew about HIV from reading the blog.

I’ve mentioned it here before, but the ante was upped considerably when I was chosen to blog on the HIVstigma.com website, part of a high profile Ontario HIV prevention campaign from the guys at GMSH, along with seven other writers. One of these was, incidentally, Brian Finch, an experienced blogger himself who subsequently went on to become publisher of PositiveLite.

xbobblog4

So that’s my background. Does it qualify me to give lessons in blogging? May be. Don’t think I’m the only game in town though. There are thousands of people out there on the internet wanting to teach you to blog, some for money, some not, I ‘m a not. Some say you get what you pay for. You be the judge.

Anyway, here are my top six reasons WHY blogging is a “good thing” for HIVers to do.

1. It feels good. This is my top ten reason for doing ANYTHING, from masturbating to making quiche and everything in between. It has to feel good. In this case the “feel goods” mostly come from the satisfaction of creating something lasting - painting a picture with words, if you like. Play your cards right and you’ll get a lot of positive feedback (I’ll tell you how to do that next time) and that can feel good too. There are many other ways blogging can feel good, but I’ll let you discover them yourself. I don’t want to spoil the fun of becoming a bona fide member of the blogosphere.

2. HIVers who blog educate others. It humanizes us. It makes people realize - surprise - we are real people with real lives, people just like them except for a certain virus that we have either come to terms with or not. Your readers can and will learn a lot about HIV too in the process. It’s a stigma-busting exercise if ever there was one.

3. It’s a record of the epidemic. One day, after the cure, you will look back on your written words and and say ” wow! I went through this”. Historians will love you too.

4. Is your HIV status making you feel lonely or isolated? You’ll make new friends!. Honestly, they come from nowhere. You will form close relationships with the most unlikely, most lively, most loyal people you never knew existed. Some of them you will meet in person, mostly not, but they can and will become an important part of your life. These people are supportive, nearly always non-judgemental, and if you play your cards right, will shower you with praise. Praise is good. Sure beats the opposite anyway. (On the downside there are also opportunities to engage in “flame wars”, the blogging equivalent of schoolyard fights. They’re not good if you dislike conflict. We’ll tell you how to avoid those also.)

5. Your life is important. Important lives are ALWAYS worth recording. Ask yourself how you are doing that now? Chances are many will draw a blank. Blogging changes everything.

6. I hope I don’t sound like a snake oil salesman, here, but blogging can be an amazing antidote to a variety of yucky human conditions we HIVers would rather not have. Low self esteem? Inability to collects one’s thoughts? Depression? Anxiety? Self-doubt? Writing about these things, examining our own behaviours, can be remarkably curative. Psychiatrists call it cognitive begavioural therapy. There is plenty of research out there to prove it works.

There are plenty more reasons why HIVers should consider take up blogging and joining the thousands millions of us who do it already, but these are my top six. Talk to other bloggers; chances are you know a few. Ask them why they do it too.

So that’s the “why”. Next time I’ll write about the “how”. From how often to blog, to how do you make sure it’s read, I’ll give my best tips for successful blogging.

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Nov10

LGBT Healthcare: Healing the Whole Person by Rt. Rev. Gene Robinson

Wednesday, 10 November 2010 Categories // News Categories, Health, Spirituality, Sex and Sexuality

I was at the Gay Lesbian Medical Association (GLMA) Conference 2010 in San Deigo. I had the pleasure of listening to Rt. Rev. Gene Robinson speak at the evening plenary on Healing the Whole Person at GLMA.

Rev. Gene Robinson is the ninth bishop of the Diocese of New Hampshire in the Episcopal Church in the United States of America.  Robinson was elected bishop in 2003 and entered office in March 2004. His public profile as a gay bishop caused much angst amongst the religious right across the Christian world.

Personally, find the topic very engaging, interesting as there is hardly any dialogue of religion or spirituality and LGBT or even in HIV/AIDS work or conferences.  There are however HIV/AIDS Interfaith Conferences in Asia but not in North America.

Hence the talk was very welcome to the packed audience of LGBT persons.  In my discussion with MSW and mental health counsellors, religion has had a huge impact on psychological well-being, mental and emotional well-being of many LGBT people including HIV positive persons.  Rev. Robinson brings an integrative aspect to embrace the unknown and work with it for our well-being.

The below is his speech (verbatim).


 

Gene robinson

“Religion plays an important part in our culture and the LGBT movement regardless of whether we believe in religion, practice it or is an atheist.  Ninety five percent of the pain experienced by LGBT is due to religion. And so religion needs to be an important part of our change and movement.  

Healing is much more involved then just curing or fixing the body.  We begin by knowing our history.  The younger we are, the more we have to study our history.  Example many young LGBT people have no idea who Harvey Milk was or what he stood for. Another example, if not for the drag queens who stood up at Stone Wall –we would not be where we are today.  I have immense respect for what they did for us.

Even though many LGBT have never read any religious text they know the word “abomination.”  God loves all LGBT beyond their wildest imagination.  At a more strategic level, we ignore religion at our own peril. Example Proposition 8 in the US, the progressive religious people were pushed out at the sides. If they were engaged, the outcome may have been different. Religion matters if we want to achieve the equal right.

Let us look at the word “ism.”  Ism is a combination of prejudice and power. What our enemy truly is, is not homophobia but heterosexism.  It is the predominant majority that needs to know about the impact of heterosexism.  They are the dominant culture who oppresses the minority.  Example on the return trip from Kenya to US, I and my partner had to fill two separate immigration forms inspite of us being together for 23 years while the straight couple in next aisle who have only been married for 2 weeks fills one form as they qualify as a family.

When you dismantle the power, the prejudice will still be there.  There will be a lot of work and healing to be done.  The reason we have so much resistance to our movement is the fear of end of patriarchy. Example, years ago, gay couples were always asked who plays the women’s role in the house or in sex.  Women are viewed as inferior and subservient to men.  Being a woman is seen as less than.  Most of us in this room are white Anglo Saxon middle class men with privilege. And you have a tiny window of what women, racialised persons and handicapped people experience because you are gay.  As gay men we have to stand up to racism and sexism.    

I want to share with you 7 principles that we can strive for:

1. Be out, be open and be a model. You are a witness to the world

2. If you live in a city, do not forget the rural LGBT people. Do not forget people in the rural are not living your life.  You cannot forget them and the privilege you have living in the city.

3. Make sure your health care facility implements the next of kin changes.

4. Do not forget your straight allies. Think of the African American movement and Civil Rights, and the Women’s Right movement.

5. As LGBT we are a natural minority and need to build bridges. We cannot afford to live in our LGBT silos.

6. We have bridges to build in our own community, as in with the transgender experience.  It is not enough to add the “T” in the acronym but to educate ourselves.

7. Take some risk for our movement.  No civil movement moves forward without taking risk. At my consecration to become the Bishop, my partner and I had to wear bullet proof vest. I had my blood type identified incase I was shot and need an infusion.  The paramedics were on stand by.  It was all very surreal, knowing the possibility of being killed.  A recent death attempt has been made on our lives.  The man was arrested on route to our home.  It is going to take all of us to do this work.  We have to keep our courage, strength, and the end result we see, will happen.

We need to draw our strength from each.  We don’t need to loose our strength, get burned out but stay in the blessed company of each other to change the world. And the change may not come in my life time, but it will.”        

End of speech.  Standing  Ovation.

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    From PrEP to porn. Bob Leahy looks at PositiveLite.com’s ten most popular posts in the last six months. How many of these did you miss?
  • Cancellation

    Cancellation

    Sad news. This is the last blog entry from Christopher Banks. Here Christopher explains why.
  • The wild birds win BUT . .

    The wild birds win BUT . .

    Megan DePutter isn’t angry. In fact she’s delighted that AIDS Committee of Guelph’s close second place finish in the Canada’s Worst Charity Website contest netted her agency a $15,000 website makeover..

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