Living with Hep C

Published 24, Feb, 2012
Author // Mark S. King - My Fabulous Disease

Mark S King has been there. But he says “The good news, thank God, is that the treatment plan worked, and I cleared hepatitis C from my body. There has been no recurrence. “

Living with Hep C

The image in my mind has never left me, even after many years of trying, of applying layers of wallpaper to that corner of my mind. I am in someone’s bedroom — it could have been anyone, really — and I am offered a syringe to inject crystal meth. The syringe has been used. I take it. I consider the consequences for a brief moment, but I am cavalier. And very, very high. I use the syringe.

It wasn’t the threat of HIV that gave me pause. It was hepatitis C, which I knew was serious… and that’s about it. But I can tell you this, now, my friends: More U.S. residents are now dying of hepatitis C complications than HIV-related illnesses, as reported recently by Tim Horn in Hepatitis News.  

Within days of using that syringe, maybe two weeks, I become horrifically ill. The acute infection swept through me like a freight train, exhausting me, turning my urine brown, making it impossible to perform routine tasks. Doctors diagnosed it quickly, and then gave me the grave treatment plan: 11 months of interferon, coupled with ribavirin. The interferon, a ferocious chemotherapy, would cause mood swings, deep depression, and would be administered, ironically, by injecting myself with it each week.

Depression is so severe among interferon patients that they do not allow pilots to fly who are being treated with it, for fear they will deliberately crash the plane.

The months I endured with hepatitis C and the treatment protocol remains the worst period of health in my life. The mental side effects were as devastating as the illness. Everything hurt. Everything made me angry. Or want to cry. Or convinced me you were against me. Those eleven months crawled by without mercy.

The good news, thank God, is that the treatment plan worked, and I cleared hepatitis C from my body. There has been no recurrence.

I’ve said that the disease most likely to kill me is addiction, not HIV, and hepatitis C was a terrible by-product of my addiction.

While I am drug-free today and maintaining good health, the report that hepatitis C has overtaken HIV as a cause of death brought up some strong emotions. It reminded me of the insanity of the interferon treatment, and then, of course, the insanity of my drug addiction. And it made me wonder how many of those who are dying of hepatitis C acquired it the same way I did.

My life is filled with unlikely rescues. To have lived with HIV for thirty years and to be here typing on my laptop is amazing. To have thumbed my nose at that fact, and reward my good fortune by sticking needles in my arm, well, that is as alarming and sad to me as it must be to you. It’s tough to feel worthy of the grace that has saved me, again and again. So I’ll simply be grateful to be clean and alive today.

Get tested for hepatitis and get the vaccine for A and B if you have not already been exposed. And should you be an injection drug user, bring your own clean needles wherever you use. You and I both know that, when the choice is a used needle or getting high, all of our good fortune can disappear in a flash.


p.s. May I sneak back on my HIV criminalization soap box for a moment? If 26 U.S. States have laws criminalizing the potential exposure of HIV to another person, than why don’t they have laws against exposing someone to hepatitis C, which is now officially more deadly than HIV? Thank you. That will be all.

You can read more of Mark S. King on his own blog My Fabulous Disease here

About the Author

Mark S. King - My Fabulous Disease

Mark S. King - My Fabulous Disease

Mark S. King and his very funny site "My Fabulous Disease" must share some DNA with Positive Lite, because his light-hearted approach to living with HIV feels just like family. "My Fabulous Disease" has the authority of Mark's lifelong HIV activism mixed with the wit of your favorite gay uncle.

Check out his full blog and more at: My Fabulous Disease