Living with HIV

U = U: how well is the message getting through to people living with HIV and their doctors?

published: August, 23, 2017 Written by // T.J. Miller Categories // Social Media, Activism, featured, As Prevention , T.J. Miller, General Health, Treatment Guidelines -including when to start, Mental Health, Health, International , Treatment, Living with HIV, Media

To help answer that question, T.J. Miller initiated a survey of HIV peers and physicians. Here are the results.

U = U: how well is the message getting through to people living with HIV and their doctors?

About two months ago, in anticipation of the upcoming International AIDS Society Conference in Paris, France, along with the United States Conference on AIDS in Washington, DC I decided to attempt a poll of both HIV-positive individuals and healthcare providers who treat HIV-positive clients. The topic of this poll was Undetectable Equals Untransmittable (U=U). In order to reach HIV-positive survey participants, I submitted posts for participants on Facebook to several HIV based groups. Thes

I got me... for now!

published: August, 23, 2017 Written by // Wayne Bristow - Positive Life Categories // Social Media, Aging, Activism, Gay Men, Mental Health, Photography, Health, Lifestyle, Living with HIV, Opinion Pieces, Wayne Bristow

Wayne Bristow: I have a list of things that I need to do and no determination to attempt any of them."

I got me... for now!

I’ve realized, I’m not burning out, I’m having days when I wake up and say, “I just don’t want to do anything today”. August 15th, 2017, I received an email from the editor of PositiveLite asking if I had something for publication, that it’s been a while since my last submission. I haven’t responded to the email yet, deciding I would write something to explain why instead. I sat here most of the day and tried to think of a place to start, and it honestly became a struggle. I

No exit?

published: August, 23, 2017 Written by // Bob Leahy - Publisher Categories // featured, Activism, Aging, Lifestyle, Living with HIV, Opinion Pieces, Bob Leahy - Publisher

Bob Leahy on HIV advocates who eschew retirement to keep on going . . and going . . and going.

No exit?

I want to talk about the life cycle of those who engage in HIV work, because it’s bothering me. It bothers me from a personal perspective because as an older adult I am nearing the end of that cycle. But it also bothers me that as community we seem kind of impervious to the consequences of not only aging but becoming aged. And as HIV advocates who stick up for minorities, accommodate those who need accommodation, we seem to have hit a blind spot.  To put this in a wider context, discussion

Brenda Musenga and the KUTUSA Ladies: fighting stigma and forging community as they go.

published: August, 22, 2017 Written by // Rob Olver - Editor Categories // Social Media, African, Caribbean and Black, featured, As Prevention , General Health, Treatment Guidelines -including when to start, Mental Health, Features and Interviews, Women, Health, Sexual Health, International , Treatment, Living with HIV, Media, Rob Olver - Editor

Robert Olver in conversation with Zambian HIV activist, Brenda Musenga.

Brenda Musenga and the KUTUSA Ladies: fighting stigma and forging community as they go.

Brenda Musenga is a determined woman. I’d had a sense of that already from reading this story by Paul Shalala, about a group of young HIV activists who had adapted Kevin Maloney’s “Rise Up to HIV+” campaign for stigma-busting use in their communities in Zambia. Paul’s story introduced and told a bit about each member of the group and what shone through to me at the time about all of them was their sheer determination not only to thrive in the face of adversity and ostracism, but to

The terrifying crystal meth story I have never told

published: August, 21, 2017 Written by // Mark S. King - My Fabulous Disease Categories // Social Media, Gay Men, General Health, Health, International , Lifestyle, Living with HIV, Media, Mark S. King

Mark S. King shares "one terrifying night during my #Meth #Addiction that I must share to get well."

The terrifying crystal meth story I have never told

When my guard is down, it comes to me. It flashes across my mind, an uninvited assault, sometimes when I am beginning to drift off to sleep or, more cruelly, when my mind is enjoying a pleasant reverie. It is then that the dark memory rushes in like a raid. He lived in a house with nice furnishings. That reassured me when I arrived for the hookup, given that so many of the other crystal meth addicts I encountered were barely holding on to the remnants of their lives. The others might have a s

I'm black, gay and living with HIV

published: August, 21, 2017 Written by // Guest Authors - Revolving Door Categories // African, Caribbean and Black, Social Media, Gay Men, Revolving Door, International , Guest Authors, Living with HIV, Media, Opinion Pieces, Population Specific

From FS Magazine, Maximus Crown writes about his experience of racial prejudice within the gay community.

I'm black, gay and living with HIV

Photo: © Chris Jepson I was born in Nigeria but I became a Londoner long before I was able to read or write, which according to some of my relatives makes me “a black man living in a white man’s world.” I know that this combined with the facts that I identify myself as a homosexual man who also happens to be HIV-positive hasn’t exactly set the scene for the most scar-free rainbow, but I have never given any of my negative experiences influence over how I viewed the world or what I

When you see them, run!!!

published: August, 18, 2017 Written by // Kimutai Kemboi, Categories // Social Media, African, Caribbean and Black, Kimutai Kemboi, General Health, Sexual Health, Health, International , Lifestyle, Living with HIV, Media, Opinion Pieces

From Kenya, Kimutai Kemboi writes about the "sponsor" phenomenon and how it feeds into the spread of HIV there..

When you see them, run!!!

'Daniel' as she used to call me, 'you are so young and unfit to be working at such a tender age. You seem to have a potential of doing something better and in this connection, what is that good thing that a person can do for that will change your life forever? ' I had one unchangeable dream and that was to go back to school. That is something I always wished for but no one asked. Her question drew a lot of thoughts in my mind but in the long run, I settled on one decision; that was to open u

New Pozcast focuses on GIPA in the workplace.

published: August, 16, 2017 Written by // Ontario HIV Treatment Network - Research Categories // OHTN OHTN/PositiveLite.com, Social Media, General Health, Mental Health, Research, Health, Ontario HIV Treatment Network, Living with HIV, Media

From Universities Without Walls, a series of informative discussions hosted by James Watson.

New Pozcast focuses on GIPA in the workplace.

The Greater Involvement of People Living with HIV (GIPA) is a set of principles that highlights engagement, equity and social justice and places people living with HIV at the centre of the HIV movement. However, implementing GIPA in the workplace can be challenging. Is it doable? Are the principles still relevant in today’s work environment? James Watson talks with two people living with HIV who work in the sector to find out, Marvelous Muchenje a Program Coordinator at the Women’s Heal

Beyond Grindr: racism, fetishisation and reimagining queer black masculinities

published: August, 15, 2017 Written by // Guest Authors - Revolving Door Categories // African, Caribbean and Black, Activism, Social Media, Gay Men, Revolving Door, International , Guest Authors, Living with HIV, Media, Opinion Pieces

From FS Magazine, Otamere Guobadia examines the current state of racism within the LGBTQ community

Beyond Grindr: racism, fetishisation and reimagining queer black masculinities

Report after report and survey after survey demonstrates that for BAME people in LGBTQ communities racism is a near universal experience. While there is enough evidence, both empirical and anecdotal, to back up the claims, very rarely do these reports answer more difficult questions about the nature of this racism. The result is often a very ‘water is wet moment’ for queer people of colour at the heart of the matter, frustrated as to the lack of depth into these investigations, which stop

Art Posi+ive: The Best of Both Worlds

published: August, 14, 2017 Written by // CATIE - HIV and Hep C Info Resource Categories // Social Media, Art, Arts and Entertainment, Mental Health, Features and Interviews, CATIE - HIV and Hep C Info Resource, Living with HIV, Media

Tradition meets innovation in the work of William Flett. From CATIE's Positive Side, this interview by Darien Taylor

Art Posi+ive: The Best of Both Worlds

Killer Whale One of William Flett’s earliest childhood memories is of the plane he was travelling on touching down on the tarmac in Haida Gwaii one dark, rainy night. He was five years old. Though William and his parents lived on the islands of the Haida people situated off the north coast of B.C. for only a year before returning to Vancouver, its culture and rich artistic traditions had a lasting impact on William’s artistic expression. The Haida reverence for the natural world and their

Insurers told to catch up on advances in HIV treatment and other medical conditions.

published: August, 14, 2017 Written by // Guest Authors - Revolving Door Categories // Social Media, General Health, Current Affairs, Health, Revolving Door, International , Guest Authors, Living with HIV, Media

Medicine has advanced; it’s time for insurance to do the same. From Independent UK, Felicity Hannah reports.

Insurers told to catch up on advances in HIV treatment and other medical conditions.

To read the full article by Felicity Hannah, visit Independent, here. The long-term outlook of people living with HIV has been improving for years and last month it was revealed that a child in South Africa had been “virtually cured” of the disease. Research published earlier this year revealed that young people receiving the latest HIV drugs now have a “near-normal” life expectancy. Yet despite such profound changes in the health of people with the conditions, one in four say

Meaningful engagement

published: August, 11, 2017 Written by // Jeff Potts Categories // Activism, Social Media, Gay Men, Current Affairs, Research, Living with HIV, Jeff Potts, Media

Jeff Potts of the Canadian Positive People Network (CPPN) calls for unity among HIV peers as together we plot CPPN's 5-year course. Complete the survey here and help to set CPPN’s future direction.

Meaningful engagement

Like so many, and always with appreciation, humility, and just a little bit of shock (sometimes), I lived well beyond my ‘best before date’. These many years later, I celebrate my life with HIV and my life – period – every single day, trying not to take its extraordinary complexities for granted. I also spend a whole lot of time reflecting on the incredible efforts of the community-based movement which has, over too many decades and in countless ways, made it possible for me, and for s

One year ago today, PositiveLite.com endorsed the U=U campaign

published: August, 10, 2017 Written by // Bob Leahy - Publisher Categories // Social Media, Activism, International , Living with HIV, Opinion Pieces, Bob Leahy - Publisher

A wild ride: Bob Leahy looks back at what’s happened since PositiveLite.com became the first Canadian organization to sign on to the Undetectable = Untransmittable (U = U) campaign

One year ago today, PositiveLite.com endorsed the U=U campaign

I don’t remember how I first heard about Bruce Richman but it was surely on social media. It was the summer of 2016. Bruce had started cropping up everywhere. He seemed charismatic, passionate, informed. I asked him for an interview. He obliged and we talked for an hour or so by phone. I posted the resulting interview on August 10, 2016  under the title “Bob Leahy talks to Bruce Richman, the man behind Undetectable = Uninfectious.” The same day we also published an editorial “Positive

August 2017 update: Proposed changes in viral load test reporting remain alarming

published: August, 09, 2017 Written by // Bob Leahy - Publisher Categories // Social Media, Activism, Current Affairs, Health, Legal, Living with HIV, Media, Bob Leahy - Publisher

Community cries foul to the news that Public Health Ontario wants to send your viral load test results to your local health unit.. Bob Leahy updates the story.

August 2017 update: Proposed changes in viral load test reporting remain alarming

August 9, 2017 Update: this isn't going away. . . . Here is what we heard this week from HALCO (HIV/AIDS Legal Clinic of Ontario). By the way, don't you just love the title of the report - "Public Health Approach to Case Management" that none in our community have even seen? That's us the report is talking about - and how our viral loads are to be managed by local Public Health offices. No thanks, says PositiveLite.com. And GIPA this is not! From HALCO . .  The Ministry of Health and Long-

Ed Wolf's journal of the Trump years for August: keep moving!

published: August, 09, 2017 Written by // Ed Wolf Categories // Activism, Social Media, Aging, Gay Men, Ed Wolf, International , Living with HIV, Media

Longtime activist Ed Wolf with 14 things to do as Twitnit comes into power.

Ed Wolf's journal of the Trump years for August: keep moving!

Student with a backpack   photo found on the internet . . . Day 66. The worrying mind Sixty-six days since the election and my worrying mind won’t leave me alone. Today it’s our health care and Planned Parenthood, yesterday a photo of a polar bear swimming in an iceless sea, tomorrow the Muslim Registry and nuclear codes; it’s all too much. Long ago I told a young man he was HIV positive. When I’d met with him at the clinic two weeks before, he’d described going to an infamous Fo

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