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U = U: how well is the message getting through to people living with HIV and their doctors?

published: August, 23, 2017 Written by // T.J. Miller Categories // Social Media, As Prevention , Activism, featured, T.J. Miller, Treatment Guidelines -including when to start, General Health, Mental Health, Health, International , Treatment, Living with HIV, Media

To help answer that question, T.J. Miller initiated a survey of HIV peers and physicians. Here are the results.

U = U: how well is the message getting through to people living with HIV and their doctors?

About two months ago, in anticipation of the upcoming International AIDS Society Conference in Paris, France, along with the United States Conference on AIDS in Washington, DC I decided to attempt a poll of both HIV-positive individuals and healthcare providers who treat HIV-positive clients. The topic of this poll was Undetectable Equals Untransmittable (U=U). In order to reach HIV-positive survey participants, I submitted posts for participants on Facebook to several HIV based groups. Thes

I got me... for now!

published: August, 23, 2017 Written by // Wayne Bristow - Positive Life Categories // Social Media, Aging, Activism, Gay Men, Mental Health, Photography, Health, Lifestyle, Living with HIV, Opinion Pieces, Wayne Bristow

Wayne Bristow: I have a list of things that I need to do and no determination to attempt any of them."

I got me... for now!

I’ve realized, I’m not burning out, I’m having days when I wake up and say, “I just don’t want to do anything today”. August 15th, 2017, I received an email from the editor of PositiveLite asking if I had something for publication, that it’s been a while since my last submission. I haven’t responded to the email yet, deciding I would write something to explain why instead. I sat here most of the day and tried to think of a place to start, and it honestly became a struggle. I

No exit?

published: August, 23, 2017 Written by // Bob Leahy - Publisher Categories // Aging, featured, Activism, Lifestyle, Living with HIV, Opinion Pieces, Bob Leahy - Publisher

Bob Leahy on HIV advocates who eschew retirement to keep on going . . and going . . and going.

No exit?

I want to talk about the life cycle of those who engage in HIV work, because it’s bothering me. It bothers me from a personal perspective because as an older adult I am nearing the end of that cycle. But it also bothers me that as community we seem kind of impervious to the consequences of not only aging but becoming aged. And as HIV advocates who stick up for minorities, accommodate those who need accommodation, we seem to have hit a blind spot.  To put this in a wider context, discussion

Brenda Musenga and the KUTUSA Ladies: fighting stigma and forging community as they go.

published: August, 22, 2017 Written by // Rob Olver - Editor Categories // Social Media, As Prevention , African, Caribbean and Black, featured, Treatment Guidelines -including when to start, General Health, Mental Health, Features and Interviews, Women, Health, Sexual Health, International , Treatment, Living with HIV, Media, Rob Olver - Editor

Robert Olver in conversation with Zambian HIV activist, Brenda Musenga.

Brenda Musenga and the KUTUSA Ladies: fighting stigma and forging community as they go.

Brenda Musenga is a determined woman. I’d had a sense of that already from reading this story by Paul Shalala, about a group of young HIV activists who had adapted Kevin Maloney’s “Rise Up to HIV+” campaign for stigma-busting use in their communities in Zambia. Paul’s story introduced and told a bit about each member of the group and what shone through to me at the time about all of them was their sheer determination not only to thrive in the face of adversity and ostracism, but to

Bruce House's transition house to close September first.

published: August, 22, 2017 Written by // Guest Authors - Revolving Door Categories // Social Media, featured, Activism, Current Affairs, Health, Media, Revolving Door, Guest Authors

From CTV News, Joanne Schnurr reports on the imminent closure of Ottawa's only transition house for people living with HIV.

Bruce House's transition house to close September first.

To read the full article by Joanne Schnurr, visit CTV News, here. Ottawa's only transition house for people living with HIV will close September 1st.  Bruce House says the high cost of running the facility and the changing needs of its clients are behind the closure. For nearly three decades, Bruce House has operated a specially-equipped transition house in Ottawa's west end to provide round the clock care for people living with HIV. But this past year has been the "perfect storm”, Br

The terrifying crystal meth story I have never told

published: August, 21, 2017 Written by // Mark S. King - My Fabulous Disease Categories // Social Media, Gay Men, General Health, Health, International , Lifestyle, Living with HIV, Media, Mark S. King

Mark S. King shares "one terrifying night during my #Meth #Addiction that I must share to get well."

The terrifying crystal meth story I have never told

When my guard is down, it comes to me. It flashes across my mind, an uninvited assault, sometimes when I am beginning to drift off to sleep or, more cruelly, when my mind is enjoying a pleasant reverie. It is then that the dark memory rushes in like a raid. He lived in a house with nice furnishings. That reassured me when I arrived for the hookup, given that so many of the other crystal meth addicts I encountered were barely holding on to the remnants of their lives. The others might have a s

I'm black, gay and living with HIV

published: August, 21, 2017 Written by // Guest Authors - Revolving Door Categories // Social Media, African, Caribbean and Black, Gay Men, International , Living with HIV, Media, Opinion Pieces, Population Specific , Revolving Door, Guest Authors

From FS Magazine, Maximus Crown writes about his experience of racial prejudice within the gay community.

I'm black, gay and living with HIV

Photo: © Chris Jepson I was born in Nigeria but I became a Londoner long before I was able to read or write, which according to some of my relatives makes me “a black man living in a white man’s world.” I know that this combined with the facts that I identify myself as a homosexual man who also happens to be HIV-positive hasn’t exactly set the scene for the most scar-free rainbow, but I have never given any of my negative experiences influence over how I viewed the world or what I

When you see them, run!!!

published: August, 18, 2017 Written by // Kimutai Kemboi, Categories // Social Media, African, Caribbean and Black, Kimutai Kemboi, General Health, Health, Sexual Health, International , Lifestyle, Living with HIV, Media, Opinion Pieces

From Kenya, Kimutai Kemboi writes about the "sponsor" phenomenon and how it feeds into the spread of HIV there..

When you see them, run!!!

'Daniel' as she used to call me, 'you are so young and unfit to be working at such a tender age. You seem to have a potential of doing something better and in this connection, what is that good thing that a person can do for that will change your life forever? ' I had one unchangeable dream and that was to go back to school. That is something I always wished for but no one asked. Her question drew a lot of thoughts in my mind but in the long run, I settled on one decision; that was to open u

The evidence for U=U: why negligible risk is zero risk

published: August, 17, 2017 Written by // Guest Authors - Revolving Door Categories // Social Media, As Prevention , Activism, Treatment Guidelines -including when to start, General Health, Current Affairs, Research, Health, International , Treatment, Media, Revolving Door, Guest Authors

From HIV i-Base, Simon Collins: "Purely theoretical risks are no longer a good enough level of evidence to sustain stigma and discrimination and certainly not criminalisation."

The evidence for U=U: why negligible risk is zero risk

Over the last year, hundreds of HIV organisations have joined a new campaign to endorse the statement that HIV transmission does not occur when viral load is undetectable on ART. And while the dramatic impact of ART on reducing HIV transmission has been known for a long time, it is new to say ART stops transmission completely. This change is especially important given that prejudice and discrimination against HIV positive people is still widespread. So while it is easy to simply answer “n

Incidence of anal cancer has already peaked among HIV-positive gay men; reductions can be achieved with expanded ART coverage and screening

published: August, 17, 2017 Written by // Guest Authors - Revolving Door Categories // Social Media, General Health, Research, Health, International , Media, Revolving Door, Guest Authors

From AIDSmap, Michael Carter reports on the first study to predict the incidence of anal cancer in HIV-positive MSM long term, taking into account cART [combination antiretroviral therapy] coverage and individual CD4 cell trajectories.

Incidence of anal cancer has already peaked among HIV-positive gay men; reductions can be achieved with expanded ART coverage and screening

The incidence of anal cancer among HIV-positive gay men peaked in 2009 and will decline substantially by 2030, even with current levels of antiretroviral therapy (ART) coverage and no cancer-screening programme, Swiss investigators report in AIDS. Further significant reductions would be achieved with 100% treatment coverage and various screening strategies. These would be more effective at preventing cases of anal populationcancer than screening for cervical cancer among women in the gener

When an AIDS Service Organization loses its funding how does it survive?

published: August, 16, 2017 Written by // Guest Authors - Revolving Door Categories // Current Affairs, International , Revolving Door, Guest Authors

Guest author Iain Murtagh from the UK updates PositiveLite.com on how fundraising revenues are continuing to keep St. Albans' The Crescent afloat

When an AIDS Service Organization loses its funding how does it survive?

Firstly we must apologise to anyone following our story for the delay in providing an update, it has been three years now since we last published an update.  So much has happened that it is hard to know where to start so I guess we will start with the MBE. That’s right, in 2016 the Crescent was awarded the MBE for voluntary organisations, The Queen’s Award for Voluntary Service, or QAVS for short.  The assessment procedure is quite lengthy as you might imagine and began with a nominati

New Pozcast focuses on GIPA in the workplace.

published: August, 16, 2017 Written by // Ontario HIV Treatment Network - Research Categories // OHTN OHTN/PositiveLite.com, Social Media, General Health, Mental Health, Research, Health, Living with HIV, Media, Ontario HIV Treatment Network

From Universities Without Walls, a series of informative discussions hosted by James Watson.

New Pozcast focuses on GIPA in the workplace.

The Greater Involvement of People Living with HIV (GIPA) is a set of principles that highlights engagement, equity and social justice and places people living with HIV at the centre of the HIV movement. However, implementing GIPA in the workplace can be challenging. Is it doable? Are the principles still relevant in today’s work environment? James Watson talks with two people living with HIV who work in the sector to find out, Marvelous Muchenje a Program Coordinator at the Women’s Heal

Beyond Grindr: racism, fetishisation and reimagining queer black masculinities

published: August, 15, 2017 Written by // Guest Authors - Revolving Door Categories // Social Media, African, Caribbean and Black, Activism, Gay Men, International , Living with HIV, Media, Opinion Pieces, Revolving Door, Guest Authors

From FS Magazine, Otamere Guobadia examines the current state of racism within the LGBTQ community

Beyond Grindr: racism, fetishisation and reimagining queer black masculinities

Report after report and survey after survey demonstrates that for BAME people in LGBTQ communities racism is a near universal experience. While there is enough evidence, both empirical and anecdotal, to back up the claims, very rarely do these reports answer more difficult questions about the nature of this racism. The result is often a very ‘water is wet moment’ for queer people of colour at the heart of the matter, frustrated as to the lack of depth into these investigations, which stop

Trying out TAVIE, the first clinically validated virtual nurse.

published: August, 15, 2017 Written by // Denise Wozniak Categories // Social Media, Denise Wozniak, General Health, Features and Interviews, Health, Media

Below are details of the app from an interview with Claire Kamoun, Director of Patient Engagement for TAVIE and Ezzat Saad, MD, PhD, Vice President, Medical & Scientific Affairs, 360Medlink Inc.

Trying out TAVIE,  the first clinically validated virtual nurse.

Recently, I have started on a trial of the new TAVIE app. Below are details of the app from an interview with Claire Kamoun, Director of Patient Engagement for TAVIE. What do you hope to accomplish with this new app? This innovative mobile application is intended to be a journey companion for people living with HIV. The app is designed to increase patients’ engagement with their care journey and adherence to their medication. Through interactive individualized coaching, the goals of T

Art Posi+ive: The Best of Both Worlds

published: August, 14, 2017 Written by // CATIE - HIV and Hep C Info Resource Categories // Social Media, Art, Arts and Entertainment, Mental Health, Features and Interviews, Living with HIV, Media, CATIE - HIV and Hep C Info Resource

Tradition meets innovation in the work of William Flett. From CATIE's Positive Side, this interview by Darien Taylor

Art Posi+ive: The Best of Both Worlds

Killer Whale One of William Flett’s earliest childhood memories is of the plane he was travelling on touching down on the tarmac in Haida Gwaii one dark, rainy night. He was five years old. Though William and his parents lived on the islands of the Haida people situated off the north coast of B.C. for only a year before returning to Vancouver, its culture and rich artistic traditions had a lasting impact on William’s artistic expression. The Haida reverence for the natural world and their

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