It’s noon, I just finished having my breakfast!. Usually I have a banana and a bowl of cold cereal, I use the left over milk in the bowl to take some supplements. As I reach for the supplements and what do I see, my HIV medications and I realize I haven't taken them yet. This is nothing new for me, it happens often, maybe too often.
A typical morning starts this way: I wake up, head upstairs to start the morning coffee. I go to the fridge for the coffee and, if I remember, I get one of my medications, one that has to be refrigerated. I'll put it in my pocket. I finish making the coffee and then head back downstairs. Most days I will remember the pill is in my pocket but some days, I'll find it there several hours later. There was this one time when I never remembered until late in the evening so I thought I would switch the time I take them to before bed, this might be the solution for me. The med that needs to be refrigerated is a booster for one of the other pills so it seemed to be re-energizing me. I never felt sleepy when midnight or 1 a.m. rolled around; I’d be awake until three or four in the morning.
I know it’s important for me to take the medications at the same time every day. My doctor had me complete a survey to see if I was ready and totally committed to taking them correctly. At the time I started them, the rule to follow was if the CD4 count went down to 350 I would have to start medications. We did one final test to see if they were going to go down further and they did - I had gone down to 330. I was beginning to experience some physical health issues, so I had to leave my job. Some of it was due to side effects from the meds but I had some other issues that weren't allowing me to function well, especially first thing in the morning.

That was back in July 2010; it’s been a year and a half now. Yesterday I had to ask what day it was, Monday or Tuesday? This not working and being able to sleep in has made it impossible to set up a schedule and adhere to it. There are nights still where I can't sleep until about 3 or 4 in the morning; when I finally do fall sleep it might only be for 3 hours, sometimes 6 hours, it depends. I thought of setting the clock and waking up at the set time, take the meds and go back to bed if I could or felt I needed more sleep. The problem I had with that was remembering to set the alarm before bed.
As for my counts, well, they haven't bounced back very high. One recent test they were at 380 and then back down to 350 on the next one, so all I seem to be doing is "hangin' in there baby". This would explain my lack of energy and becoming very lazy, resulting in yet another few pounds on the old body. Factor in this strange winter weather, a lot of grey days and rain and I just don't feel motivated to go out, not even for my favourite hobby, photography.
Oh, what to do? I think I will have to buckle down and treat the taking of my meds as a job, set that clock every night, wake up and do the job and get on with my day. I believe if I do this, my counts will climb higher, at least I hope they do.
For more information on the Importance of treatment adherence, check out this on CATIE.
Editors Note: Another recommended site for treatment adherence ideas is that of pharmacist Bill Larson, here. Watch for a seriies of guest posts from Bill on this topic on PositiveLite.com soon.