Like many HIVsters, I’ve made ample use of therapy; both personal and group, at times simultaneously. One might add that I am, or was, therapy-naïve – never saw much use in it, and this particular extravagance was more for the camaraderie and the drinks after it was done. In one such group session – here at Gay Men’s Health Crisis (GMHC) in New York City -- the facilitator (I believe that’s what they’re called, others go by ‘moderator’) mentioned a concept that had me spitting nails: the idea that one should develop said HIV identity. It would help us ‘get in touch’ with the supposed turmoil within.
Well, no, I said. I neither need nor want that. My identity doesn’t include an accidental disease, and I don’t do turmoil. I speak French, read books, cook, I’ve walked down Fifth Avenue in nothing but a pair of combat boots, Calvin Kleins and a big smile, am active in politics, write stuff people actually read, I’ve even met the President of the United States – the current, sane one, not that hot mess we had until three years ago. I’m a New York hipster, for crying out loud. That should suffice to establish a secure sense of self. And just who the fuck do you think you are anyway?
So, no, I don’t have any use for this particular bit of thera-blather, I said as nicely as I could. Which still, if memory serves, wasn’t all that nice. The way I was brought up – military family, you do the math – boys don’t have feelings to begin with. If you have a problem, you sit down and work on it. You certainly don’t talk about it with mom, or dad, or your friends, and if that problem resides below the waistline where the icky parts live, you’re definitely going to mind your manners and remember that polite company is wherever you happen to be. All very British, if you will, or German, rather, because that’s my actual background. If you know anything at all about that particular ethnic group, aside from their utter lack of humor, it’s that our ‘therapy’, such as it is and Freud be damned, consists of invading defenseless neighboring countries.
And all of that served me quite well, thank you very much, for a long time. Granted, being a slab of meat devoid of detectable emotion can cost you. Say, a stunning man you’re still in love with twenty years later and an ocean apart, the one you never told just how much you love him.
I find, however, that people who vigorously disclaim something – I tend to be one of those – do so for the simple reason that someone has struck very near a mark, and continue thinking about and watching what goes on around them. And so I did. I watched those young kids, clearly terrified, walking into GMHC for probably the first time. I had a friend break down in tears over not having anyone to talk to about his status but me, not his family, not his other friends, no one in God’s creation. Just me. That other pretty young guy, maybe half my age and worth his weight in gold, crying on the street. Or that poor transgendered woman who had just had the stuffing kicked out of her by the ‘real’ women in the homeless shelter, with no idea where to go next. Just heartbreaking, and yes, I do have one. Somewhere.
I forget when it was, sometime two summers, I suppose, when the flip-side of the Anglo-Teutonic iciness came out; and that is, simply put, the idea that one has a duty to be there for others. The idea of duty is, I believe, one of the strongest moral forces in our world; it’s why we pay taxes and at least try not to break laws. Judaism has a very useful concept for that called ‘Tikkun Olam’, ‘Repair the World’ in Hebrew. The idea, once you strip it of all the extraneous religious verbiage, is simply this: that as human beings, we live in a society, and have a positive moral obligation to make it better for everyone. As in, stop talking, take action. So far, so good, and all emotional aloofness aside, I personally actually have a pretty good track record on that; leftwing activist and all.
I decided that my duty was to be as open about my HIV status – positive, in case you’re wondering – as I could be. That’s one reason why I write here, on Daily Kos, on Alternet, and probably more as this journey progresses. One other reason is, of course, that I like to hear myself talk, but my editors have learned to live with that, bless their hearts.
But talking alone isn’t action, is it, unless you calculate the value of being out and, God alone help us, maybe being a role model for some kids none of us may ever know. Stigma is still out there, it ruins lives, and it pisses me the fuck off.
I decided to cancel my therapy group just recently. It was getting tiresome anyway, and frankly, I’m not all that interested in the granular details of the sex life of strangers (unless I plan on being a part of it, but that’s a story for another day, and most certainly not applicable in that particular context). Instead, I joined ACT UP New York, the mothership, still around after all these years. And guess what? ACT UP still gets stuff done. Amazing, that, and I get to be a part of it.
So I guess that’s my HIV identity: I’m very much okay with everything, and so is everyone around me. I’ve done a few small things for other HIVsters, nothing to write home about, not yet at least. I’m healthy as a horse, my career is getting back on track, my relationship is solid, you get the idea. I’ve stepped out of the shadow of the disease. I’m in charge now, not some virus.
I suppose that’s the moral of the story and what my facilitator was talking about. You’ll have your own HIV identity when you own the disease, not the other way around. I really do believe that everyone can get there; and meanwhile, never shut up, raise hell, and if anyone tells you it can’t be done, laugh in their face. Because it can.