You can read Part 10 here.
The Spring of 2011 was a mixed bag for me. The March earthquake still kept me a bit on edge with every aftershock. At the same time, I was getting more jaded with every one of them, to the point where it was just a part of my daily routine. Wake up, coffee, shake, breakfast, lunch, shake, dinner, TV, shake, bed, and maybe another shaker in the night.
However I was more upbeat than could be expected. I was more involved at the gym, my health and energy were way up. I also was getting into my gardening and was enjoying all the time I was getting outside.
In the first week of May, I always hosted a home party during Golden Week. However it seemed Japan had taken a break from the Cherry blossom parties and other celebratory events. So I thought I would follow suit and do the same.
I was getting pretty social on twitter. I had always heard of twitter, but had no real interest in it. I was surprised with the relationships I was making there, and found myself talking to these people every day. It was however a bit disheartening that some of my best peeps where in the U.K. Area and a women named Karen in Ireland. Karen, John, (@viraloadwarrior ) and me were tweeting almost daily come June. We would get so silly in our conversations that I found myself LOL to the point of tears at times. John too, confessed to having some of the strangest tweets with us. Karen was getting excited about an upcoming wedding in Italy and was happy to tweet pictures of her dress and talk about a mad hunt for shoes to go with.
John was now talking about moving back to London for a new job, but he still seemed to be unsure.
Another friend Gaetan was tweeting pics of flowers from a trip he had taken and was leaving it up to us followers to guess what the varieties of plants he was posting were. I was all over this, thinking I was pretty smart about plants. However there was one follower of his that kept jumping in before I could tweet my answers. His name was Mike, and in his bio it mentioned gardening. So I clicked "Follow" and never regretted it.
Another couple of friendships that developed there were two gals who were always busy tweeting away with me. One was named Caroline, who was a lifeguard in London and the other was named Susanna in Germany. They would end many tweets with "Mwah! and xxxxx) This was a bit new to me, but I soon found myself tweeting it too. I thought it was a bit dorky at first, but it soon just became routine.
Susanna was talking about a trip to the UK and I found myself a bit envious. "How cool would that be to fly there and meet all these people?"
Looking at the success of these relationships, I thought. "Well maybe some of the other foreigners like me living in Japan are on twitter." So I did a search and came across a girl called @SandraJapandra. I read through some of her tweets and decided to follow. To my amazement she followed back. Up to this point all my followers had something to do with HIV - living with it, writing about it, or working with people living with it.
So here was this girl living in Japan and she followed me knowing about my condition. I still had it in my mind that some people have harsh thoughts about someone living with HIV, and due to the heavy subject would not follow me. But anyway, I went through the people she was following and found this treasure trove of people living in Japan and tweeting about it. From there I went on a follow frenzy. And many began to follow back! After Sandra came James, then MuseInTokyo, Jonathan, Shana, Alice, Richard N., a girl called Kimiecat , Frank, Jenny S, Sarah M. and more!
After thinking I was so savvy being a foreigner living in Japan and on twitter and soon realized I was just a drop in the bucket. It felt so nice to start to forge new friendships with people who were in my grasps.
In my June visit to the doctor I was greeted with good news. My birthday was coming and my doctor said he had a birthday present for me. He was holding my blood work. My CD4 was stable the last few tests, I didn't know what to expect? He turned the paper over and "Boom!" My CD4 had shot over the 200 mark. I was no longer living with AIDS!
I now was just a guy living with HIV. I always knew how HIV led to AIDS, but I didn't realize how it could go in the other direction too.
After the doctor I met with my counsellor. She too was really excited about my results. I shared with her how well I was taking my meds, and staying on schedule. One day I had missed my evening meds. It wasn't until the next day that I realized it. In a panic I contacted my doctor. He assured me that all was OK and that I shouldn't worry. My counsellor told me too not to worry about missing it too. She asked if I had a pill box or any way to help me to remember. I told her I mostly kept the pill boxes in my bags. It was a large pill box for every day of the week and each day had four compartments. Morning, noon, evening, and bedtime. The daily compartments could be removed individually and I had put one pill in one of the days, and had put one in each of my bags, so to make sure I had my meds with me everywhere I went. It was so routine now to take meds, that after a couple of hours later, I really couldn't remember if I had taken them.
After leaving the hospital I was excited to share the news with my family and some of the friends I had made on twitter. Karen, John and another guy named Andy who I was more and more in contact with, were all excited for me. I mailed John and shared the thought of writing more of my story down in blog format or something. He was totally supportive and encouraged me to do so. However it would take me another three months before I would actually get up the courage to do so.
One night while following the twitter time line, I noticed that some of the Japan followers were meeting up for a trivia night in Ebisu. This was some kind of fund raiser to do with the earthquake victims of March 11th. Some of my favorite twitter people would be there, including Sandra, the first one I followed in Japan. I tweeted an interest in going and soon Kimiecat said I should come. For some reason it took me back a few steps of the reality of meeting some of these people. I felt a bit uneasy for some reason, and soon told myself not to impose on these people's night.
One of them posted a picture of the group and I was so happy to see such a nice group of people enjoying their evening and the hopes of meeting them went up another notch. The next day I thought to myself, if I saw another chance to meet some of these new twitter friends I would take it. One American who had been such a dear friend to me in Japan was no longer talking to me. The reason why still confuses me to this day. Other friends had moved back to their countries. Most all my other friends were Japanese, and I thought it would be nice to have some foreign friends again. I had a new life and It was time to make some new Gaijin friends before I forgot how to speak English.
I hadn't been very social for almost a year, mostly due to health reasons and lack of energy. Then money played a part and after the earthquake I was still uneasy about being too far from home. Summer was upon us, and I was back to the best health I had seen in years. It was time to get back to work on my social life. So I had a new motto, "Get out of the house! Meet people!"
Soon after that I saw my chance. Kim (kimiecat) was planning a voice workshop for doing voice work in Japan. I soon thought to myself "You're going!" Many people who I was already following were going too. I really didn't care what it was. Even if it was a workshop about the mating habits of the crows in Ueno Park, I still would've gone. I contacted Kim and she was excited to have me join them.
I felt like I was standing on a point, looking out onto a new life with new and wonderful people in it. For the others going it was probably like, "Ya. I got this thing coming up." For me, for some reason, it was a bit more and I was counting the days to the workshop.
I went to bed that night with all kinds of giddiness.
Part 12 Will wrap up this story of my year with HIV. I will talk about the workshop, crashing a tweetUp, then organizing a tweetUp. And the struggle of writing "Part one, My first year with HIV."